I have been receiving immunoglobulin treatments since I was 21 years old. I was diagnosed following an acute rheumatoid arthritis attack when I was 15 years old. Actually I should really be saying that I was “pre-diagnosed” because as time progressed and my antibodies decreased at each subsequent test it was predetermined that I would eventually be needing immunoglobulin replacement therapy. I was lucky as I did not have to live through the same horrible situations other patients faced before finally being diagnosed.
After 20 years of immunoglobulin therapy, the last 3 using home subcutaneous therapy, I can proudly state that I do not let my disease define who I am: I travel and very physically active. Subcutaneous immunoglobulin therapy has given me lots of freedom while traveling because I can inject myself at the times that are most convenient for me. It is not always easy to find down time to inject myself, but “I got to do what I got to do”! I have never had any problems traveling with supplies, whether it be by plane (with security or customs), or by train: the personnel have always been very accommodating and I have been able to store my products in a refrigerated area.
As I mentioned I am very physically active. I am a runner and I train hard. I love to run: when I am stressed I put on my sneakers and run as hard as I can. I did my first half marathon last august and I am planning a full marathon within 2 years.
Being Immunodeficient in no way prevents me from living my life to the fullest, on the contrary, it motivates me to make my health a priority and stay healthy.
