Mrs. Marcia Boyle, President of the Immune Deficiency Foundation (IDF) in the USA talk about the patient organisation that units the US patients.
Mrs. Boyle founded IDF following her sons’ diagnosis of X linked Agammaglobulinemia. She has spearheaded the patient programs at IDF and the development of new tools to respond to the needs of patients in this ever changing environment.
The importance of a Canadian Registry
