« L’Association des Patients Immunodéficients du Québec (APIQ) » emerged from the desire of patients and their families expressing a need to gather, share experiences, obtain information about their diseases and to help promote research in these rare diseases.
In 1992 :
IPOPI was established – International Patient Organisation for Primary Immunodeficiencies, works as the global advocate for the PID patient community.
In 1996 :
CIPO was created – Canadian Immunodeficiencies patient organization.
In 2004 :
CIPO-Quebec Chapter was born to address the needs of patients in Québec
In 2010 :
Patients with Hereditary Angioedema (HAE) join the CIPO-Québec chapter. The Québec Immunologists recommended to the CIPO-Québec Chapter that they offer services to this small group of HAE patients as it represents a rare immune deficit.
In 2012 :
APIQ « l’Association des Patients Immunodéficients du Québec » was founded to offer more services to both groups of patients: the patients with immunodeficiencies (PID) and the Hereditary Angioedema (HAE) patient group. APIQ thus functioned independently of CIPO although remained affiliated to both CIPO and IPOPI to advocate for patients.
In 2013 :
APIQ became a non-for-profit organisation able to issue receipts for charity to donating organisations
In 2014 :
In an effort to give more pertinent distinct services between the HAE patient group and the PID patient group, the HAE patient group (AOHQ) was given its own division with logo and distinct web site offered the following year.
In 2016 :
In an effort to give more clarity on the operational role of APIQ, responsible for the operations of the 2 distinct patient groups PID and HAE, the web pages for APIQ and PID were separated giving both PID and HAE more focus on disease specific information.